Sunday 17 November 2013

Entry 32: #Mirandamoments

Well hello and good day to you dear reader wherever you are. I do hope you're well and smiling. Okay, back to me… Previously in my life I was writing my weekly blog but ran out of things to say as I sank into a depression that saw my ability to get out of bed shrink to a daily struggle. Thankfully because I do not like to smell and I have also got some very blunt friends, I did at least manage to shower fairly frequently.
The major breaking headline that will bring you most currently up to speed with my personal 'Share in a Chair' Life is that I have managed to return to work (in my head I can hear general applause so thankyoutoyoukindregards, my imaginary cheerleading squad). Returning to work has thrown up an incredible amount of challenges on a number of different fronts. More on that in a moment.
In other news whilst the summer weather was glorious this year I did manage to completely burn my feet and they inflated into two very red balloons at the end of my legs. Even now, several months later, on a very cold day you can see the area where the skin was damaged. Note to all - Wear Sunscreen.
And finally, my two-bedroom flat that I live in, where I sleep in the lounge, get dressed in the lounge, eat in the lounge, work in the lounge, entertain guests in the lounge, stay sick in bed in the lounge, watch TV in the lounge and so on, is finally being renovated. The main hall corridor was too narrow for my power wheelchair to turn into either of the bedrooms and also the bathroom doorway was so narrow I could not go in there unless in my shower chair. For the discerning amongst you, you'll realise that meant any toileting i.e. emptying of leg bag, had to be done in the lounge or in and around the bathroom area without closing the door. You know you are considered a true friend by myself if I'll happily urinate in front of you as it only involves a bottle and the flick of a switch. Oh and a pair of rubber gloves by those of a more hygienic ilk.
So, I have returned to work. When I say returned, what I mean is I now work two partial days a week as opposed to the full-time, frenetic contract I was previously on. The first thing that really struck me was blind panic on not being able to cope with the demands and rigours of being a teacher in the classroom. I hadn't needed to work my brain for so long that when I was in lessons my brain strongly reminded me of a slug attempting to crawl towards a boozy trap laid down for my consumption and delight. The problem was that my brain felt extremely slimy, sloppy and lazy, so the old grey matter metaphorically slipped through my fingers and I could not get a grasp on any of the material I was meant to be teaching. I could not form sentences, I could not develop a flow of questions and I felt as though I would implode. Particularly as so many very well-meaning and kindhearted people kept telling me how well I was doing. More than once I returned home as a quivering wreck to my PA, who then had to deal with a snot-ridden, wailing banshee who still could not form sentences or even at times simply draw breath… I do believe in medical terms this is what is known as a "Panic Attack". On the plus side, it did bring me out of my depression so it wasn't all bad.
Don't get me wrong, returning to work has been a goal of mine pretty much ever since I left the spinal unit three years ago, and it is something I still very much want to do but like with everything in the disabled world, nothing is ever as you would expect it to be. First and foremost I was very, Very, VERY fortunate that my job was still even open for me, which of course made this possible, along with the incredible support of my colleagues, family and friends. However after having had three years of not needing to be tied to any responsibilities or have any commitments whatsoever, being able to do whatever I wanted, whenever I wanted, meant that having to turn up two days a week and deliver lessons felt like enormous pressure. So much can go wrong to prevent me from turning up anywhere at any time, that the commitment of turning up to work on time twice a week felt impossible to maintain. I honestly did not think I would make it to half term… But somehow I did (thankyoutoyoukindregards, again to my imaginary cheerleading squad).
Now that I am passed the half-term-halfway-point, I am actually feeling incredibly positive about the whole thing. As one wise person said to me, I just had to give myself time to settle in and readjust. I mean, did I really think I could just roll into the classroom and pick up where I'd left off three years ago? Of course not, that would be silly! (*Okay I did expect to… I still thought I "had it", but apparently I'd "lost it" and I needed time to "find it", which was a real shock*) and I realise I am still adjusting. After all, I cannot do what I used to do with having no working limbs, and the size of my chair often means I cannot get to every pupil in the classroom or even sit close enough to them to see their work properly. This is why I have to develop new skills in working in partnership with my PA at school; a whole different ballgame to working with a PA at home.
Anyway, moving on… It has now been a few weeks since I wrote the above. Life kind of ran away with me and as they say time waits for no man. As an addendum, if indeed 'addendum' is the correct word to use here, (good word 'addendum'; I think it's all the Ds but it almost sounds like the beginning of the Eastender's theme tune. Try saying it out loud – ADDENDUM… ADDENDUM… Ahem…) I have now moved back into my lovely abode following the finishing off of the renovation works. Cue massive sort out and reorganisation of literally everything I own – perfect excuse to go to IKEA :-) and downsizing/minimising/dematerialising literally everything I own from clothes to crockery to classic-nay-vintage CDs that I will never play again. Whilst it is something of a mammoth task it is almost like Christmas, as one opens a box that has been in the shed or under the bed for the past twelve months and you wait with baited breath to see what long forgotten treasures are stored within. The charity shops of my town won't know what's hit them!
Anyway chums, I must be off but it has been lovely catching up and sharing this little missive. I'd love to say it will be a regular thing but the idea of commitment at such a level is a bit too much for me right now (the word "commitment" is in fact a dirty word in my house, and should you so sully my ears as to sound it within my walls you would be requested to either 1. Leave via the back door whilst performing a Celine Dion song of my personal choice or B) reenact one of the latest bush tucker trials from "I'm a celebrity…".) You have been warned.