It's amazing how quickly time can fly when you have nothing
to do. I wrote in my last blog about being bored. Bored I definitely was, as I
really did have nothing to do… And I would say the last week and a half has
passed by superfast because I immersed myself in Facebook games, and TV shows
(mostly Doctor Who). I completed a very small amount of paperwork, and I was
fortunate enough to have a number of good friends come round and fill me in on
their life; one or two even kicked me up the backside (as my lovely father
would say) in getting on with some stuff that needs doing i.e. phone calls and
chasing up stuff.
I have been attempting to get back on the wagon as it were,
attempting to go back to work, attempting to get involved in voluntary
organisations, attempting to do something worthwhile with my time. It's
impressive just how long it takes for any of these things to happen!
Interestingly enough, quite a few of the places I volunteered for actually
turned me down – they already had enough help. This is a phenomenon I've never
come across before… And I can only assume it's because I live in an area where
people are generally quite giving their time. I certainly hope it's not because
of my disability… Although you never know. One thing I'm concerned about if I
do go back to work, and take on these new voluntary roles (the ones I did
manage to get involved with) is how on earth I'm going to have time to maintain
my games – my farm on Facebook will suffer! My Royal Story and my castle will
crumble. I won't be able to see what everyone else is doing, and check-in six
or seven times a day on my wall. I have a feeling I might have a Facebook
addiction. Hmm.
As a quadriplegic with limited arm movement and hands that
do not work, options are limited. I'm very fortunate to live in a time when
technology is at such a level that I can control my computer with my voice, and
other accessible technology (such as a mouth mouse which you may have seen on
previous pictures). I'm able to use a telephone via a "possum" – an assistive
technology device that actually can control the telephone, the TV, plug sockets
and therefore anything switched into them… In fact there is a whole world of
assistive technology out there, it just costs a lot of money. So, being useful
as a quadriplegic at my level is a constant quandary for myself. I have become
adept at asking others to do things for me. I have developed skills were in my
mind I plan out almost military fashion, and then run off a speech to my poor
PA of things that need to be done and how. I recognise that my memory is not
strongest, therefore I make sure everything is written down in my diary, or on
lists on my desktop. But again, this isn't really being useful to others. It's
merely "living life" – getting the washing done, cleaning up, sorting
out shelves, ordering medication etc. It certainly doesn't give me that much of
a sense of purpose.
One interesting thing I've noticed about society is that
when people meet each other, one of the very first question is now ask is
"so what do you do?" It is a truth universally acknowledged that a
person without proper employment will often lack a sense of identity. I still
tell people I'm a teacher, even though I have not worked in a classroom for
three years now. I know that at my core I am A Teacher. New mothers often feel
as though they have become nobody, because they are housewives/home
keepers/mummies, and society today still does not recognise that even though
this is an unpaid job, it is quite possibly The Most Important job there can
be. Though a human being may not be able to move, be it just their legs or
their entire body, it is important to remember that they still have something
to offer the world. Their experiences, their knowledge, their understanding and
perspective… Take Steven Hawking for example. Prime example of a person who
cannot move at all, and yet through the power of assistive technology has
produced huge volumes of mind-boggling scientific work.
So then. I began today's blog about my boredom and how I
dealt with it. I find that as I rambled on my conclusion has somehow become
quite a statement in recognising that a person has so much more to give them
what the eye might see. This is why you should never believe in first
impressions. A person may be disabled – but that doesn't mean they have nothing
to offer the world. It also doesn't mean that they are inaccessible, locked in
their own body and unapproachable. In fact quite the opposite – it might take
longer, it might need money spent on equipment and support, but at the end of
the day Every Human Being is important because they have something unique to
offer the world. My question is will you pause long enough to find out what
that is?
"I have developed skills where in my mind I plan out almost military fashion"
ReplyDeleteI liken it to the game of snooker where the players have to think 5 6 7 shots ahead or they come unstuck.
An example of that for me is not putting the beer bottle/ gin and tonic holder in my backpack before going down the pub.
(Parts of the strategy also involves predicting how a PA will do a task despite the clear instructions that you give them and adjusting the original instructions statement to fit.
So I guess you could call it reverse engineering dialogue.
I hate snooker it is boring and mind numbing. :)